Meet Our CASK Warriors!

Here is a quick video to tell you about CASK Gene Disorder and meet our CASK Warrior Anthony
Across the world, children with CASK gene mutations are born with either microcephaly (a smaller-than-average head size) or macrocephaly (a larger-than-average head size). While these medical terms may sound clinical, behind them are extraordinary children and young adults—CASK Warriors—whose lives are marked by love, resilience, and unbreakable courage.
At the CASK Warriors Foundation, we are committed to honoring every individual and every journey impacted by a CASK gene mutation.
What These Diagnoses Often Involve:
Developmental delays and mobility challenges
Communication and feeding difficulties
Seizures and other complex medical needs
But let us be clear—these challenges do not define our children.
Our CASK Warriors are:
Joyful
Expressive
Determined
Unique
Each child with a CASK gene disorder is affected differently, but every story matters. Every milestone—no matter how small—is a victory. We are endlessly proud of the strength and spirit within each one of you.
To our CASK families around the world: You are not alone.
We stand with you. We fight beside you. And we celebrate the incredible warriors you love.

