Anthony is one of only about 49 boys in the world diagnosed with CASK Gene Disorder—a rare and devastating genetic condition that currently has no cure or approved treatment. Faced with this heartbreaking reality, his mother, Terry, chose action over despair. She founded the CASK Warriors Foundation with a bold mission: to accelerate research, drive awareness, and ultimately find a cure. Thanks to advances in gene therapy, hope is no longer a dream—it’s a real, scientific possibility. And with your support, we can make that future a reality for Anthony and others like him.
Together we can work towards finding a cure through gene therapy research. At CASK Warriors Foundation, we know the science and understand the complex nature of this disease. We are fundraising to provide gene therapy for all children with CASK Gene Disorder, starting with the boys first and those most severely afflicted with the disease. A cure using CRISPR gene editing to create a gene therapy is around the corner with your help!
This foundation was born out of love for a remarkable boy named Anthony.
Our Mission
Gene Therapy to cure CASK Gene Disorder
We are raising funds to support gene therapy research. We are focused exclusively on gene therapy as other options for treatment do not offer a cure. The ideal outcome for those affected with CASK Gene Disorder is the complete elimination of the disease.
Our mission is to offer gene therapy to all boys with CASK Gene Disorder to begin with and once the boys have been helped we will offer gene therapy to girls so that everyone has a chance.
We are proud of our recent launch of the CASK Warriors Foundation, a mission-driven nonprofit dedicated to improving outcomes for children diagnosed with the ultra-rare CASK Gene Disorder - with a critical focus on supporting males who often face the most severe presentation and have access to the fewest resources. Also, we are fully supporting our female CASK Warriors to the same degree as our males!
This groundbreaking work will help lay the foundation on how to help people who have a deadly and debilitating disease through CRISPR gene therapy. Our hope is to be able to provide a cure to all the people with CASK Gene Disorder and then expand to help other people with rare diseases as well!
