Donate today and help support gene therapy research for CASK Gene Disorder

CASK WARRIORS FOUNDATION

Help us fundraise for a cure for CASK Gene Disorder

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No child should face barriers to being healthy. CASK Warriors Foundation is committed to funding gene therapy research so that a cure can be developed for CASK Disease and other rare diseases.

Gene therapy is the best treatment option for a life-threatening rare disease like CASK Gene Disorder. Gene therapy can completely eliminate the disease and give each CASK Warrior his or her life back.

We ask you to join CASK Warriors in their fight against CASK Disease. The time for innovation and funding gene therapy research is now!

About Us

This foundation was started because of a special boy Anthony Storella Levinsky. He has a rare genetic disease and is one of only 40 boys in the world with CASK Gene Disorder. As there is no treatment or cure for this disease, Anthony's mother Terry Storella decided it was time to find the cure. With the advances in gene therapy a cure is possible.

Together we can work towards finding a cure through gene therapy research. At CASK Warriors Foundation, we know the science and understand the complex nature of this disease. We are fundraising to provide gene therapy for all children with CASK Gene Disorder, starting with the boys first and those most severely afflicted with the disease. A cure using CRISPR gene editing to create a gene therapy is around the corner with your help!

fundraising for cask gene disorder gene therapy

Our Mission

Gene Therapy

We are raising funds to support gene therapy research. We are focused exclusively on gene therapy as other options for treatment do not offer a cure. The ideal outcome for those affected with CASK Gene Disorder is the complete elimination of the disease.

Our mission is to offer gene therapy to all boys with CASK Gene Disorder to begin with and once the boys have been helped we will offer gene therapy to girls so that everyone has a chance.

There is another foundation that is working on treatments for girls with CASK so that explains why we are focused on helping the boys first. With boys, the disease is often more severe as boys only have one affected X chromosome whereas girls with CASK Gene Disorder typically have one normal X chromosome and one abnornmal X chromosome.

Fundraising Activities

Fundraising Events: To help raise funds we will have events and the following activities.

We will be hosting an annual CASK Warriors Foundation GALA dinner
Online Auctions
Community Events
5k races
Merchandise Page to include t-shirts and other CASK Warriors products
We will link to Amazon with recommended products that help Anthony. Buy through our page to support CASK Warriors Foundation.
We are working on partnering with the brands that have made a difference in helping our CASK Warriors by offering products that make a difference. Stay tuned.